Join Our Pediatric Celiac Disease Registry!

Our purpose for the Pediatric Celiac Disease Registry is to collect clinical information from patients with Celiac disease and other gluten-related disorders which will allow us to better understand the natural history of celiac disease and gluten-related disorders,  identify barriers of care, and help improve our approaches to care and treatment. 

Your information can help us to:

 

 

Study the many clinical presentations at diagnosis of celiac disease and other gluten-related disorders

 

 

Identify the long-term impacts of celiac disease and other gluten-related disorders

 

 

Understand and address the challenges faced among children and caregivers in the management of celiac disease and gluten-related disorders

 

 

Help to support better diagnostic tools and treatments, and more...

 

 

 Study Overview

 

         Who can join this study?

Any patient at UCSF Benioff Children's with Celiac disease or gluten-related disorder

 

What do I have to do as a patient?

 

All you have to do is attend your regular appointments at UCSF Benioff Childrens Hospital & take a yearly survey

What information are we looking at?

Information in your medical chart related to your Celiac / Gluten-related disorder, including: 

  • Demographics, medical and family history, diet history, and height and weight
  • Data about your celiac disease (diagnosis information, celiac disease panel results, lab results, imaging studies, and genetic testing information

Questionnaires about your childs quality of life and life circumstances

 

Contact Us Today to Join!

Click here to Email

UCSF Team

Mala Setty, MD Prinicpal Investigator

Patrika Tsai, MD Co-Principal Investigator

Emily Wilks Clinical Research Coordinator

 

Learn more about Celiac disease and UCSF Benioff Childrens Hospital

Celiac Disease | Conditions | UCSF Benioff Children's Hospitals (ucsfbenioffchildrens.org)